CROSBY TOWNSHIP, Ohio (WKRC) – A local man is putting his pedaling skills to work for a good cause. He’s biking for the rare disease epidermolysis bullosa, or EB. He is the great uncle to two young ...

The rare inherited disorder epidermolysis bullosa, or EB, leads to skin so fragile that it tears like tissue paper. The resulting wounds and blisters are slow to heal and prone to infection. On ...

Dystrophic Epidermolysis Bullosa Research Association (DEBRA) Research and the University Medical Center Groningen (UMCG), ...

Patients with severe dystrophic epidermolysis bullosa, or EB, have skin so fragile, the slightest touch can lead to blistering and, eventually, large, open wounds that never heal, causing immense pain ...

Patients with the most severe form of a certain inherited disease have skin that is susceptible to wounds, some that never fully heal. For years, the only treatment was supportive care, including ...

Tayma struggles with the most severe version of Epidermolysis Bullosa, also known as butterfly disease, a rare disorder that causes skin to blister and crack Zineb Laalej Zineb Laalej tells PEOPLE ...

EXCLUSIVE: Eddie Vedder, lead singer of veteran rockers Pearl Jam, has been helping to fund a cure for Epidermolysis Bullosa ...

BREWER, Maine — A community of friends and strangers is rallying behind a Brewer family after their baby daughter, Elliana Campbell, died from a rare and incurable skin disease called Epidermolysis ...

As BioMendics prepares to share its progress during the 2026 J.P. Morgan Healthcare Conference and Biotech Showcase, the Ohio-based biotech is advancing what could become the first disease-modifying ...

ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT. This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On ...

Woodbury man came from Libya to Minnesota for treatment of rare skin condition, then stayed to earn his degree and become a ...